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Launching the Rare Disease Series

This summer, Rachel and I co-founded the not for profit film making enterprise, The Rare Disease Series. The goal of the project is simple: to explore through film what #RareDisease means for the people who suffer from them, their families and those who treat them.

This would not be possible without the guidance from Sheila Khawaja our Patient Adviser and Nick Sireau from #Findacure who helped us to shape our project from the start.

Check out our trailer below and share your stories at


#RareDisease #RareStorytelling #PatientCoCreation