Patient advocacy Archives -
rare patient engagement, rare disease
449
archive,category,category-patient-advocacy,category-449,qode-social-login-1.0,qode-restaurant-1.0,ajax_fade,page_not_loaded,,select-theme-ver-4.1,wpb-js-composer js-comp-ver-5.7,vc_responsive

Shortening the time to diagnosis

[vc_row row_type="row" use_row_as_full_screen_section="no" type="full_width" text_align="left" background_animation="none" css_animation=""][vc_column][vc_column_text]A rare disease affects fewer than 1 in every 2000 people1. However, because there are over 6 thousand known conditions, this means that having a rare disease is anything but rare. Approximately 1 in every 17 people you meet...

0
0

Prime Minister Theresa May awards rare disease charity founders

[vc_row row_type="row" use_row_as_full_screen_section="no" type="full_width" text_align="left" background_animation="none" css_animation=""][vc_column][vc_column_text]On May 13th 2019 the UK Prime Minister, Theresa May  recognised Nicola Miller, based in Kent, and her sister Rebecca Stewart, from Aberdeen, for raising awareness of the very rare condition Xeroderma Pigmentosum (XP) through their charity, the ‘Teddington...

0
0