Rare Insights

Exploring the ideas, innovations, and individuals shaping the future of rare disease.

Primary Healthcare Workers and the Diagnosis of Rare Disease

The Role of Primary Care in Rare Disease Diagnosis

It takes years, and usually more than 7 different physicians, before most people with a rare disease[…]

Creating Patient Support Tools That Stick!

How to Build Patient Support Tools That Patients Actually Use

People are becoming increasingly empowered, and their experience of their own health and that of their children[…]

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