Rare Insights

Exploring the ideas, innovations, and individuals shaping the future of rare disease.

Cultivating Diversity in Clinical Trials Through Patient Advocacy Groups

Achieving diversity in clinical trials is essential to ensure equitable access to healthcare interventions and improve health[…]

How Patient Advocacy Amplifies the Patient Voice in Clinical Research

In recent years, there has been a growing recognition of the importance of including the patient perspective[…]

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