AI, Rare Disease Research, and the Risks of “Synthetic Patients”
Artificial intelligence (AI) is beginning to find its place in rare disease research. With small populations, fragmented[…]
Making It Easier for Patients to Find the Online Health Information They Need
Why we should be optimising content to target Google SERP features (Google Search Engine Results Page). As[…]
Great online patient information is useless if it can’t be found!
With digital misinformation often making headlines, it’s easy to forget that this is a golden age of[…]
The Impact of Social Media Information Silos on Rare Disease Patients
The Emergence of Information Cocoons: In the age of social media, the phenomenon of information cocoons, where[…]
Using Niche Social Channels to Boost Diverse Patient Recruitment in Clinical Trials
Clinical trial recruitment for rare diseases poses unique challenges, including finding diverse patient populations that are often[…]
How to Build Patient Support Tools That Patients Actually Use
People are becoming increasingly empowered, and their experience of their own health and that of their children[…]
Designing Human-Centred mHealth Applications That Work
Here is a burning question – Why is it that despite the plethora of apps now available,[…]