Preparing for EU Joint Clinical Assessment: A Rare Disease Sponsor’s Guide
How Patient-Centric Approaches Can Drive Market Access and Reimbursement Success The European healthcare landscape is undergoing a[…]
Understanding Rare Disease Patient Symptom Search Behaviours Online
Research into human information search behaviour offers valuable insights into how patients and caregivers navigate the process[…]
Overcoming Patient Identification Challenges in Rare Disease Research
Rare disease identification is one of the most critical challenges in healthcare. For patients experiencing vague, overlapping[…]
Using Behavioural Models to Build Effective Digital Patient Engagement Strategies
In the age of patient-centric healthcare, deciphering human behaviours has emerged as a cornerstone for creating successful[…]
Uncovering the “Why” Behind Behaviour to Engage Rare Disease Patients and Families
Living with a rare diagnosis brings with it a unique set of challenges. Research can be sparse,[…]
A Sponsor’s Guide to Navigating the EU Joint Clinical Assessment Framework
Prioritising Patient-Driven Outcomes for Rare Disease Biotechs The Joint Clinical Assessment (JCA) framework, established under the EU Health Technology[…]
Making It Easier for Patients to Find the Online Health Information They Need
Why we should be optimising content to target Google SERP features (Google Search Engine Results Page). As[…]
Great online patient information is useless if it can’t be found!
With digital misinformation often making headlines, it’s easy to forget that this is a golden age of[…]
The Challenge of HTA: Supporting Patient Advocacy Groups Effectively
The intersection of rare diseases with Health Technology Assessment (HTA) is a complex juncture in the modern[…]