Using Behavioural Models to Build Effective Digital Patient Engagement Strategies
In the age of patient-centric healthcare, deciphering human behaviours has emerged as a cornerstone for creating successful[…]
Uncovering the “Why” Behind Behaviour to Engage Rare Disease Patients and Families
Living with a rare diagnosis brings with it a unique set of challenges. Research can be sparse,[…]
A Sponsor’s Guide to Navigating the EU Joint Clinical Assessment Framework
Prioritising Patient-Driven Outcomes for Rare Disease Biotechs The Joint Clinical Assessment (JCA) framework, established under the EU Health Technology[…]
Making It Easier for Patients to Find the Online Health Information They Need
Why we should be optimising content to target Google SERP features (Google Search Engine Results Page). As[…]
Great online patient information is useless if it can’t be found!
With digital misinformation often making headlines, it’s easy to forget that this is a golden age of[…]
The Challenge of HTA: Supporting Patient Advocacy Groups Effectively
The intersection of rare diseases with Health Technology Assessment (HTA) is a complex juncture in the modern[…]
Medical Gaslighting: How It Delays Rare Disease Diagnosis
Addressing the Challenge of Medical Gaslighting In healthcare domain, achieving a timely diagnosis is not just advantageous;[…]
Introducing the PPALS Patient Advocate Program for Rare Diseases
From Grief to Advocacy: Amy Fadden – Rare Disease Advocate | Co-Founder and Vice President Aislinn’s Wish Foundation[…]
Empowering Neuromuscular Disease Management: Insights from the eNMD Congress
Insights from the eNMD Congress on E-Health & Innovation In November, I had the privilege of attending[…]