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Rare Insights

Exploring the ideas, innovations, and individuals shaping the future of rare disease.

Patient experience data is now core evidence for the Joint Clinical Assessment

November 10, 2025 | 2:19 pm

The EMA’s Reflection Paper published in September 2025 confirms an important shift. Patient experience data is no[…]

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RAREready™ – structured EU JCA readiness for rare-disease sponsors

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