Rare Insights

Exploring the ideas, innovations, and individuals shaping the future of rare disease.

EU JCA 2025 Explained: What Rare Disease Sponsors Need to Know Now

The EU Joint Clinical Assessment (JCA) is one of the most significant changes to hit market access in years.[…]

JCA is underway…what it really means for rare disease evidence

Introduction This article first appeared in the Rare Focus newsletter on LinkedIn (October 2025). The EU Joint Clinical[…]

Why Patient Voices Are Critical for EU Joint Clinical Assessment (JCA) Now

The European Union is in the midst of a transformative shift toward a harmonized Health Technology Assessment[…]

Uncovering the "why" behind behaviour to better engage with rare disease patients & their families.

Uncovering the “Why” Behind Behaviour to Engage Rare Disease Patients and Families

Living with a rare diagnosis brings with it a unique set of challenges. Research can be sparse,[…]

Making It Easier for Patients to Find the Online Health Information They Need

Why we should be optimising content to target Google SERP features (Google Search Engine Results Page). As[…]

Exploring Lay Summaries: Collaborating with Patients for Clearer Communication

In the modern healthcare landscape, where the language of medicine can be overwhelming, the quest for clear[…]

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