Understanding Rare Disease Patient Symptom Search Behaviours Online
Research into human information search behaviour offers valuable insights into how patients and caregivers navigate the process[…]
Overcoming Patient Identification Challenges in Rare Disease Research
Rare disease identification is one of the most critical challenges in healthcare. For patients experiencing vague, overlapping[…]
Reducing Diagnostic Delays in Rare Diseases
A rare disease affects fewer than 1 in every 2000 people1. However, because there are over 6[…]