How Patient Advocacy Amplifies the Patient Voice in Clinical Research
In recent years, there has been a growing recognition of the importance of including the patient perspective[…]
swii.ch health Are Proud Media Partners of RAREfest22
RAREFEST is back in person and we are proud to be media partners for this important event[…]
The Impact of Rare Diseases on Children and Their Siblings
As we return from time with family and friends over the Easter holidays (and at the time[…]
Reducing Diagnostic Delays in Rare Diseases
A rare disease affects fewer than 1 in every 2000 people1. However, because there are over 6[…]
The Role of Primary Care in Rare Disease Diagnosis
It takes years, and usually more than 7 different physicians, before most people with a rare disease[…]