The Impact of Social Media Information Silos on Rare Disease Patients
The Emergence of Information Cocoons: In the age of social media, the phenomenon of information cocoons, where[…]
Exploring Lay Summaries: Collaborating with Patients for Clearer Communication
In the modern healthcare landscape, where the language of medicine can be overwhelming, the quest for clear[…]
Why Rare Disease Patients Struggle to Recall Seemingly Unrelated Symptoms
The path to an accurate diagnosis for rare diseases is often paved with challenges, one of which[…]
Using Niche Social Channels to Boost Diverse Patient Recruitment in Clinical Trials
Clinical trial recruitment for rare diseases poses unique challenges, including finding diverse patient populations that are often[…]
Cultivating Diversity in Clinical Trials Through Patient Advocacy Groups
Achieving diversity in clinical trials is essential to ensure equitable access to healthcare interventions and improve health[…]
How Patient Advocacy Amplifies the Patient Voice in Clinical Research
In recent years, there has been a growing recognition of the importance of including the patient perspective[…]
swii.ch health Are Proud Media Partners of RAREfest22
RAREFEST is back in person and we are proud to be media partners for this important event[…]
The Impact of Rare Diseases on Children and Their Siblings
As we return from time with family and friends over the Easter holidays (and at the time[…]
Behavioural Science in Action: Changing Customer Behaviour
Behavioural science seems to be a red hot topic at the moment, with week on week a[…]