Rare disease patient insight & engagement
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Rare disease patient insight & strategy
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Patient Experience Lab
Understanding Behavioural Models for Effective Digital Engagement Strategies
Uncovering the "why" behind behaviour to better engage with rare disease patients & their families.
Making it easier for patients to find the information they need.
Great online patient information is useless if it can’t be found!
The challenge of HTA - supporting patient advocacy groups
Medical Gaslighting - Hampering the time to diagnosis
Introducing the PPALS Patient Advocate Program
Empowering Neuromuscular Disease Management
Social Media Information Cocoons and the Risks for Rare Disease Patients
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Rare disease patient insight & engagement
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